AU Press Releases

Alfred University alumna tapped to head national Muscular Dystrophy Association

Ellen “Lynn” O’Connor Vos, a 1978 graduate of Alfred University with a degree in nursing, has been named the chief executive officer of the national Muscular Dystrophy Association (MDA), making the change after a 22-year career at greyhealth group, where she was most recently president and chief executive officer of the organization.

According to a release from the MDA, Voss will oversee more than 800 staff members based at the agency’s office in Chicago, as well as in regional offices in the U.S.

“We are grateful to have Lynn onboard,” said R. Rodney Howell, chairman of the board, in a news release. “She is joining MDA at an incredibly important time for our organization, when the pipeline of promise in research is yielding more new drug approvals than ever before.”

One of Vos' key focuses will be to expand MDA's existing patient resources, which includes information about care plans and reimbursement.

According to the MDA release, Vos said she felt it was “the right time to use all the tools in [her] toolbox,” which includes her expertise in pharmaceutical and digital marketing, medical education, and clinical education.

“I'm all about transformation and innovation,” said Vos. “I felt it was the right time in my career to apply all that energy and expertise to make a difference. The exciting thing about MDA is some of the research they're doing is really starting to pay out with some good drugs on the market for [spinal muscular atrophy].”